Iafme - IAFME International Alliance for Myalgic Encephalomyelitis | IAFME International Alliance for Myalgic Encephalomyelitis

Our aim is to secure an appropriate public health response from the World Health Organisation (WHO) and its Member States to:

Recognise M.E. as a "serious, chronic, complex, and multisystem disease that frequently limits the activities of affected patients" (Institute of Medicine, 2015) and adopt measures to provide a global and co-ordinated public health response.
Put in place transparency and a consultation process with M.E. organisations and people living with M.E., on decisions related to M.E.
Support accelerated biomedical research to develop better diagnostic methods and treatments for M.E.
Ensure appropriate medical education for professionals working with people living with M.E.

The IAFME values align with well-established global health principles and must be upheld by all members:

Human rights-based approach – working together to advance and protect the rights of people with M.E. and secure equity
Collaborative – work in partnership with the people with M.E. we individually serve, partners and the broader health community to achieve our purpose
Transparent and accountable – effectively governed with clear accountability and decision-making through a collaborative agreement
Independent – an independent body working to achieve mutually agreed purpose and objectives.

WHO WE ARE